Category Archives: Disabled Children

Summing it all up in a big long way, three days in the making


I had my final meeting with the program director and we are coming upon the last day of the program.  I am sad to see it go.  I had so much hope and anticipation for this summer, as I do for every summer, and the flip of the calendar page […]

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That House


There is always a person in every group who, when reflecting upon his childhood, says, “my house was THE one that everyone always hung out in.”   Usually,  it is said in a way as to imply that the family had a quality that we should admire – warmth, openness, […]

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In Any Language, Yes is Still Yes


Andrea, the Director of the CLC program, with her Hungarian accent, keeps making me cry.  The woman must think I am a ridiculous, emotional wreck who has not come to terms with my son’s disability – a feeling that I would profess is entirely not true – or maybe it […]

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Accessories


This time with Max is going quickly and we are into somewhat of a routine here at the hotel.  He goes to his program in the morning and I do a combination of not important things – and I like it that way. I keep thinking Max is suddenly so […]

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I just don’t get it?


So, for eight years have been thinking about CP and reading about it and talking about it and sometimes I think I can explain it ( as I often do) and then there are these moments when all the understanding seems to evaporate and I am still left standing with […]

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Grand Rapids – the early days


I am in Grand Rapids – as is the funeral of Betty Ford – but being that I am not invited to the gatherings of First Ladies, I need to find something to do.  I will, from this point forward, attempt to document my entire experience. For those of you […]

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Yes, I am a &*%^&$ control freak…


I like things to be a certain way.  I like the silly little things to be right because I believe that if they are in order, the big things will work themselves out.  I must make the beds everyday, put things in certain places, organize the linen closet, frequently change […]

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Max’s life in feet…


It is the eve of Max’s 8th birthday and as always I am both reflective and anticipatory.  I am cleaning up in preparation for my entire summer away from home and am in the process of sending items up to the attic.  I have accumulated a collection of Max’s braces […]

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Friends and Enemies


Let’s face it – most end-of-the-year school programs naturally cause us to not only reflect upon the passage of time, but also force us to look at our children in comparison to all the others. Sure, we tell each other that we shouldn’t measure our children against our friends’ children […]

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What to wear, What to wear


Today we have Max’s IEP meeting … quite possibly, 3 of scariest letters in the English language for much of mankind.  I will dispense with the definitions and restrain myself from giving a dissertation on the subject in lieu of a light-hearted look at the inner workings of my brain. […]

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