Category Archives: Disabled Children

Momma’s got a big ol’ BUT…


And not the kind that looks good in skinny jeans… Most 13-14 year old boys don’t really want to spend 24 hours a day with Mom. Even Max, who has remained surprisingly cuddly and tolerant into his teen years, has a breaking point.  We have been together going on more than a […]

Continue reading...

Huh?


It’s 11:50 p.m. and Max and I should be sleeping, but there is no way in the entire world that anyone who is literally not unconscious could sleep. There is a ridiculously loud beeping sound, all the lights are on in our room, someone is fussing with the television on […]

Continue reading...

Wait… I still have to iron the shower curtain!


I stayed up until 2:00 a.m. Thursday night knowing we were leaving at 5:00 a.m.  It wasn’t because I was anxious or anything, of course… it was because I was cleaning everything I could get my hands on. That’s my thing. I have found a direct correlation between an entirely crumb […]

Continue reading...

Sometimes You Gotta Run Before You Can Walk


Iron Man said that, so it must be true. No more fitting time to start writing again… there was nothing much to say for the last few years and now, suddenly there is so much to say. Plus, I have to admit that I have been haunted by the friend […]

Continue reading...

6 Month Check Up


I love clean teeth. I nag the kids about brushing their teeth and refuse to let even one required brushing slip past my watchful eyes – but this post is not about oral hygiene. Every six months, from the time the kids were babies, I made sure we scheduled the […]

Continue reading...

Memory Lane


In the past few days, I have been traveling down memory lane and it is not because I was looking at photo albums or stalking boyfriends on Facebook. I was visiting the memory lane that was Max’s medical history.  It started in the car Saturday afternoon when I was alone […]

Continue reading...

Parenting Books


I am addicted. I have read so many parenting books that I can’t even keep them all in my library. I read one after another after another and swear that each one will be the ONE. Perhaps I should have my Barnes and Noble/Amazon/Kindle accounts revoked? I will read any […]

Continue reading...

Optical Illusions


I suddenly have so many thoughts swirling through my head… As those of you who read here as regularly as I write… not…know that summer often brings a overwhelming amount of consideration to all things Max. I don’t know if it is simply an inevitable mathematical result because Sophie is […]

Continue reading...

Ok… Nevermind


The title belongs to Hun who chided me a bit for whining yesterday.  As soon as I posted yesterday’s entry, Camp called to tell me that Max climbed to the top of the rock wall, rang the bell and then walked across a log plank… all by himself.  The camp […]

Continue reading...

Just Plain Weird


Ten years…. Max’s age as of last week and the amount of time I have been a mom to a child with cerebral palsy.  One would think, I would think, that I would have gotten the hang of it by now. This past year brought Max much success and many […]

Continue reading...