Category Archives: Disabled Children

Healing


Every night at 10:00 the hospital intercom announces that is it “Quiet Time.” The announcement tells us that we should turn off phones and keep talking to a whisper because quiet is good for healing.  It is a nice message and it makes me feel like I am living in […]

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Taking one for the team


The team I’m referring to is the team of parents who have kids with disabilities or illnesses that don’t get better with a dose of antibiotics…a team that I have been on for a while. At this point, I’m sure I must be captain of varsity and am looking forward […]

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How to balance the Sophie with the Max


  It’s Sophie’s 17th Birthday – she is 17 years old today!  I have no idea how that is even possible. She is quite possibly only 9 or 10…11 on a big day. She is downstairs having a get together with about 15 friends who are some of the coolest […]

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Badge of Honor


I have been having a lot of trouble stopping myself from worrying about big things, so I am forcing myself to focus on the good.  One of the surprising things I really like right now is my security badge.  Parents of kids who are patients here at the hospital get […]

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Momma’s got a big ol’ BUT…


And not the kind that looks good in skinny jeans… Most 13-14 year old boys don’t really want to spend 24 hours a day with Mom. Even Max, who has remained surprisingly cuddly and tolerant into his teen years, has a breaking point.  We have been together going on more than a […]

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Huh?


It’s 11:50 p.m. and Max and I should be sleeping, but there is no way in the entire world that anyone who is literally not unconscious could sleep. There is a ridiculously loud beeping sound, all the lights are on in our room, someone is fussing with the television on […]

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Wait… I still have to iron the shower curtain!


I stayed up until 2:00 a.m. Thursday night knowing we were leaving at 5:00 a.m.  It wasn’t because I was anxious or anything, of course… it was because I was cleaning everything I could get my hands on. That’s my thing. I have found a direct correlation between an entirely crumb […]

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Sometimes You Gotta Run Before You Can Walk


Iron Man said that, so it must be true. No more fitting time to start writing again… there was nothing much to say for the last few years and now, suddenly there is so much to say. Plus, I have to admit that I have been haunted by the friend […]

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6 Month Check Up


I love clean teeth. I nag the kids about brushing their teeth and refuse to let even one required brushing slip past my watchful eyes – but this post is not about oral hygiene. Every six months, from the time the kids were babies, I made sure we scheduled the […]

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Memory Lane


In the past few days, I have been traveling down memory lane and it is not because I was looking at photo albums or stalking boyfriends on Facebook. I was visiting the memory lane that was Max’s medical history.  It started in the car Saturday afternoon when I was alone […]

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