Category Archives: Disabled Children

Me, my Smugness, and I


We are quite a combination, that smugness and I! We have spent years together and grown to a level of comfort similar to that of an old married couple. It’s the give and take that really showcases our relationship.  For example, Last year, when we took Max to Camp Simcha, […]

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August


The calendar turned to August today and like so many other people, I loathe the thought.  It isn’t witty nor original to hate August.  In fact, it is so commonplace that it doesn’t even make sense to really mention it. I even have a beloved cartoon living in my desk […]

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Open, Close, Repeat


Hours and hours and hours of watching people do physical exercise is really freakin’ exhausting.  I have to make the appointments, schedule ALL the things, plan what time we have to go, drive there, stop on the way for dunkindonutstarbucksmdonaldswendysmoredunkindonuts and then actually arrive on time to whatever appointment it […]

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Home Sweet Home


We have been home from the hospital for about ten days now. I wanted to write but there were no words coming to me. Perhaps it is from exhaustion or that weird feeling that I remember of returning home from overnight camp when nothing seems to make sense at home. […]

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Healing


Every night at 10:00 the hospital intercom announces that is it “Quiet Time.” The announcement tells us that we should turn off phones and keep talking to a whisper because quiet is good for healing.  It is a nice message and it makes me feel like I am living in […]

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Taking one for the team


The team I’m referring to is the team of parents who have kids with disabilities or illnesses that don’t get better with a dose of antibiotics…a team that I have been on for a while. At this point, I’m sure I must be captain of varsity and am looking forward […]

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How to balance the Sophie with the Max


  It’s Sophie’s 17th Birthday – she is 17 years old today!  I have no idea how that is even possible. She is quite possibly only 9 or 10…11 on a big day. She is downstairs having a get together with about 15 friends who are some of the coolest […]

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Badge of Honor


I have been having a lot of trouble stopping myself from worrying about big things, so I am forcing myself to focus on the good.  One of the surprising things I really like right now is my security badge.  Parents of kids who are patients here at the hospital get […]

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Momma’s got a big ol’ BUT…


And not the kind that looks good in skinny jeans… Most 13-14 year old boys don’t really want to spend 24 hours a day with Mom. Even Max, who has remained surprisingly cuddly and tolerant into his teen years, has a breaking point.  We have been together going on more than a […]

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Huh?


It’s 11:50 p.m. and Max and I should be sleeping, but there is no way in the entire world that anyone who is literally not unconscious could sleep. There is a ridiculously loud beeping sound, all the lights are on in our room, someone is fussing with the television on […]

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