Category Archives: Disability

Oh, poor Emily


Late Thursday night I took a trip to Target for school supplies for Max.  I probably should have done that before the fourth day of school, but part of me didn’t quite believe Max was actually going back to school, so why spend money on notebooks?  I found myself in […]

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Me, my Smugness, and I


We are quite a combination, that smugness and I! We have spent years together and grown to a level of comfort similar to that of an old married couple. It’s the give and take that really showcases our relationship.  For example, Last year, when we took Max to Camp Simcha, […]

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Sometimes you have to let the other guy win


I think sometimes we all keep score of things even if we don’t want to.  Today’s score has CP in the lead with us trailing behind picking up the discarded water bottles, snack bags, dirty socks and sweaty towels.  We put up a good fight, got a little bloody, showed […]

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August


The calendar turned to August today and like so many other people, I loathe the thought.  It isn’t witty nor original to hate August.  In fact, it is so commonplace that it doesn’t even make sense to really mention it. I even have a beloved cartoon living in my desk […]

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Open, Close, Repeat


Hours and hours and hours of watching people do physical exercise is really freakin’ exhausting.  I have to make the appointments, schedule ALL the things, plan what time we have to go, drive there, stop on the way for dunkindonutstarbucksmdonaldswendysmoredunkindonuts and then actually arrive on time to whatever appointment it […]

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The before and after and in-between


I realized that I haven’t written much in the last few weeks and it really is mostly due to the fact that there isn’t too much going on. We are literally just waiting for Max to get better.  It is like watching the proverbial pot of water boil on the […]

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Healing


Every night at 10:00 the hospital intercom announces that is it “Quiet Time.” The announcement tells us that we should turn off phones and keep talking to a whisper because quiet is good for healing.  It is a nice message and it makes me feel like I am living in […]

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How to balance the Sophie with the Max


  It’s Sophie’s 17th Birthday – she is 17 years old today!  I have no idea how that is even possible. She is quite possibly only 9 or 10…11 on a big day. She is downstairs having a get together with about 15 friends who are some of the coolest […]

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Momma’s got a big ol’ BUT…


And not the kind that looks good in skinny jeans… Most 13-14 year old boys don’t really want to spend 24 hours a day with Mom. Even Max, who has remained surprisingly cuddly and tolerant into his teen years, has a breaking point.  We have been together going on more than a […]

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One week down, 432,987 more to go!


At least that is what it feels like.  It shocked me to realize that we have only been at this hospital game for one week. Trust me, this parenting thing is not for the faint of heart! We have had more ups and downs in the last few days than […]

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