Category Archives: Cerebral Palsy

Did I do this?


I  was looking forward to my trip to Michigan as a chance to get back into the habit of writing what I like to think of as my previously entertaining and pithy blog posts.  I have been away from writing for far too long, consumed by life. As it turns […]

Continue reading...

Shining through the clouds


I was so looking forward to this morning.  I had an appointment with the dermatologist. Really.  I love the dermatologist. As one can see, I am clearly lacking any sort of thrill-seeking tendencies that would worry a psychiatrist. Nevertheless, as I travelled down Route 18, the sun was beginning to […]

Continue reading...

Sure wish I were allowed to curse…


It has been a crowded place here in my brain this last month or so. It is like the closet door you have to shut quickly before everything falls out. Better to just walk past it without opening it I suppose.  Max, Max and more Max is all I have […]

Continue reading...

PTSSPMSPRHS


I am so tired, I can’t think straight and I am so tired. See, I can’t even write a sentence. I am standing in my kitchen with my 27th or so cup of caffeine procrastinating some unpleasant tasks and feeling completely unable to think. I thought that writing might take […]

Continue reading...

Perky for PERCS


PERCS- that is what the surgery our Maxie is having tomorrow is called.  Apparently the name no longer has anything to do with the actual procedure and harkens back to the early days of experimenting on and torturing little children with CP.  It used to be a very major surgery […]

Continue reading...

A drive gone wrong


Max has never ever been an anxious kid.  He has taken life in strides and run fast into new situations with his head held high and a smile on his face.  He is a joiner, a partier, the outgoing  Mayor of every town. Until 2 weeks ago.  It all began […]

Continue reading...

A trip back in time…to the Baby Pool


Oh, my love affair with our pool has always been very passionate.  I have loved it since the day we moved into a neighboring town 14 years only to grow more fond when we moved a few blocks away.  I dream of opening day, I cry on closing day, and […]

Continue reading...

Summing it all up in a big long way, three days in the making


I had my final meeting with the program director and we are coming upon the last day of the program.  I am sad to see it go.  I had so much hope and anticipation for this summer, as I do for every summer, and the flip of the calendar page […]

Continue reading...

In Any Language, Yes is Still Yes


Andrea, the Director of the CLC program, with her Hungarian accent, keeps making me cry.  The woman must think I am a ridiculous, emotional wreck who has not come to terms with my son’s disability – a feeling that I would profess is entirely not true – or maybe it […]

Continue reading...

Accessories


This time with Max is going quickly and we are into somewhat of a routine here at the hotel.  He goes to his program in the morning and I do a combination of not important things – and I like it that way. I keep thinking Max is suddenly so […]

Continue reading...