Category Archives: Cerebral Palsy

Healing


Every night at 10:00 the hospital intercom announces that is it “Quiet Time.” The announcement tells us that we should turn off phones and keep talking to a whisper because quiet is good for healing.  It is a nice message and it makes me feel like I am living in […]

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Taking one for the team


The team I’m referring to is the team of parents who have kids with disabilities or illnesses that don’t get better with a dose of antibiotics…a team that I have been on for a while. At this point, I’m sure I must be captain of varsity and am looking forward […]

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How to balance the Sophie with the Max


  It’s Sophie’s 17th Birthday – she is 17 years old today!  I have no idea how that is even possible. She is quite possibly only 9 or 10…11 on a big day. She is downstairs having a get together with about 15 friends who are some of the coolest […]

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Badge of Honor


I have been having a lot of trouble stopping myself from worrying about big things, so I am forcing myself to focus on the good.  One of the surprising things I really like right now is my security badge.  Parents of kids who are patients here at the hospital get […]

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One week down, 432,987 more to go!


At least that is what it feels like.  It shocked me to realize that we have only been at this hospital game for one week. Trust me, this parenting thing is not for the faint of heart! We have had more ups and downs in the last few days than […]

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Optical Illusions


I suddenly have so many thoughts swirling through my head… As those of you who read here as regularly as I write… not…know that summer often brings a overwhelming amount of consideration to all things Max. I don’t know if it is simply an inevitable mathematical result because Sophie is […]

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Ok… Nevermind


The title belongs to Hun who chided me a bit for whining yesterday.  As soon as I posted yesterday’s entry, Camp called to tell me that Max climbed to the top of the rock wall, rang the bell and then walked across a log plank… all by himself.  The camp […]

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Just Plain Weird


Ten years…. Max’s age as of last week and the amount of time I have been a mom to a child with cerebral palsy.  One would think, I would think, that I would have gotten the hang of it by now. This past year brought Max much success and many […]

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The Problem That Isn’t


The problem I am about to write about shouldn’t even be allowed to be called a problem.  Rather, it should be called a blessing, but for some reason it feels like a terribly burdensome problem that I cannot seem to solve. What a fitting way to end our month long […]

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Malfunction Malfunction (and spoken in a robotic voice…)


My boy is made up of many parts – and many of them mechanical, inanimate and highly breakable. A few weeks ago, his alignment was off.  His walker veered to the right no matter what he did. He frequently found himself in the bushes and sometimes in the middle of […]

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