Monthly Archives: July 2011

That House


There is always a person in every group who, when reflecting upon his childhood, says, “my house was THE one that everyone always hung out in.”   Usually,  it is said in a way as to imply that the family had a quality that we should admire – warmth, openness, […]

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Chuckie hates us


Max loves Chuckie Cheese’s. We banned our family from going there for many years for fear of the germs of the unwashed children and the overall yucky-ness of mass entertainment.  I also had flashbacks from a birthday party there years ago when I started having hot flashes while stuck inside […]

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In Any Language, Yes is Still Yes


Andrea, the Director of the CLC program, with her Hungarian accent, keeps making me cry.  The woman must think I am a ridiculous, emotional wreck who has not come to terms with my son’s disability – a feeling that I would profess is entirely not true – or maybe it […]

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Accessories


This time with Max is going quickly and we are into somewhat of a routine here at the hotel.  He goes to his program in the morning and I do a combination of not important things – and I like it that way. I keep thinking Max is suddenly so […]

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I just don’t get it?


So, for eight years have been thinking about CP and reading about it and talking about it and sometimes I think I can explain it ( as I often do) and then there are these moments when all the understanding seems to evaporate and I am still left standing with […]

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Grand Rapids – the early days


I am in Grand Rapids – as is the funeral of Betty Ford – but being that I am not invited to the gatherings of First Ladies, I need to find something to do.  I will, from this point forward, attempt to document my entire experience. For those of you […]

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Off and running – without a care in the world


I hardly know where to begin… there is just so very much to say that I uncharacteristically don’t have the words. We left home a few days ago to journey toward Michigan. I successfully cleaned and organized every speck of our lives so that I could sail onward with a […]

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Yes, I am a &*%^&$ control freak…


I like things to be a certain way.  I like the silly little things to be right because I believe that if they are in order, the big things will work themselves out.  I must make the beds everyday, put things in certain places, organize the linen closet, frequently change […]

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