Oh, poor Emily


Late Thursday night I took a trip to Target for school supplies for Max.  I probably should have done that before the fourth day of school, but part of me didn’t quite believe Max was actually going back to school, so why spend money on notebooks?  I found myself in […]

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Poetry in Motion


In honor September first, a few reflections on our summer of good American family fun. We traveled to the Mountain………….Side Children’s Specialized Hospital. Spent so much time in the pool……….therapy. Enjoyed lots of time with our Children’s………………hospital. Took long drives out to the Garden……………………..State Parkway. Felt the sun on our […]

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Me, my Smugness, and I


We are quite a combination, that smugness and I! We have spent years together and grown to a level of comfort similar to that of an old married couple. It’s the give and take that really showcases our relationship.  For example, Last year, when we took Max to Camp Simcha, […]

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Sometimes you have to let the other guy win


I think sometimes we all keep score of things even if we don’t want to.  Today’s score has CP in the lead with us trailing behind picking up the discarded water bottles, snack bags, dirty socks and sweaty towels.  We put up a good fight, got a little bloody, showed […]

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August


The calendar turned to August today and like so many other people, I loathe the thought.  It isn’t witty nor original to hate August.  In fact, it is so commonplace that it doesn’t even make sense to really mention it. I even have a beloved cartoon living in my desk […]

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Open, Close, Repeat


Hours and hours and hours of watching people do physical exercise is really freakin’ exhausting.  I have to make the appointments, schedule ALL the things, plan what time we have to go, drive there, stop on the way for dunkindonutstarbucksmdonaldswendysmoredunkindonuts and then actually arrive on time to whatever appointment it […]

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The before and after and in-between


I realized that I haven’t written much in the last few weeks and it really is mostly due to the fact that there isn’t too much going on. We are literally just waiting for Max to get better.  It is like watching the proverbial pot of water boil on the […]

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Home Sweet Home


We have been home from the hospital for about ten days now. I wanted to write but there were no words coming to me. Perhaps it is from exhaustion or that weird feeling that I remember of returning home from overnight camp when nothing seems to make sense at home. […]

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Healing


Every night at 10:00 the hospital intercom announces that is it “Quiet Time.” The announcement tells us that we should turn off phones and keep talking to a whisper because quiet is good for healing.  It is a nice message and it makes me feel like I am living in […]

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Taking one for the team


The team I’m referring to is the team of parents who have kids with disabilities or illnesses that don’t get better with a dose of antibiotics…a team that I have been on for a while. At this point, I’m sure I must be captain of varsity and am looking forward […]

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